Support

Lending a hand to patients and family members

We Are Here To Help

At the Children’s Cancer Caring Center, we are here to help. We understand the multi-faceted impact that childhood cancer has on a family, and the staggering costs that come along with it. Through our medical treatments, non-medical ancillary programs, special events, resources, and after-treatment support, we provide complete and total care for children stricken with cancer and their family members – all at absolutely no cost.

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Facts and Resources

How many children are diagnosed with cancer in the U.S.?

In the U.S., approximately 43 children per day, or 15,780 children per year, are expected to be diagnosed with cancer (10,450 children ages 0 to 14, and 5,330 children ages 15 to 19).

How many children are diagnosed with cancer around the world?

Every two minutes, a child is diagnosed with cancer. That’s 300,000 kids around the world every year.

What are symptoms to look out for in my children?

  • An unusual lump or welling
  • Unexplained paleness and loss of energy
  • Easy bruising
  • An ongoing pain in one area of the body
  • Limping
  • Unexplained fever or illness that doesn’t go away
  • Frequent headaches, often with vomiting
  • Sudden eye or vision changes
  • Sudden unexplained weight loss

What are the most prevalent forms of childhood cancer?

Leukemia, brain and spinal cord tumors, neuroblastoma, Wilms tumor, lymphoma, rhabdomyosarcoma, retinoblastoma, and bone cancer.

What is the average cost of medical care for one child?

The average cost of treating a case of childhood cancer now stands upwards of $500,000, with parents paying an average out-of-pocket bill of $35,000.

What is the frequency of patients requiring hospitalization?

Every patient at diagnosis and for induction treatment requires hospitalization. Some patients require multiple hospitalizations.

What is the span of time that a child receives treatment?

Having seen over 55 different types of cancer in the past 52 years, “low” risk patients have required 12-30 months of treatments; for “high” risk patients it could run anywhere from 24 months to a lifetime. Long term treatment related problems, as well as relapses, are a risk for all patients.  If this should occur, lifetime care and follow-up is required. The Children’s Cancer Caring Center, at times, will provide this extended follow-up as our Medical Director knows the patient’s background and has treated the patient in the past.

What is the cure rate for childhood cancer?

Overall cure rates for childhood cancer have improved from 20% to 80% in the last 50 years.

What is the number of patients turned away by other hospitals now being treated at the Children's Cancer Caring Center?

Over the past 8 years, 28 patients have come to our center, some in mid-treatment, after the families have exhausted all financial resources and could no longer pay the hospital and doctors they were turned away from. The Children’s Cancer Caring Center has never turned away a patient.

Cancer is the #1 killer disease in children under the age of 15 in the United States. (1)

Florida is a leading state with incidences of cancer. (2)

One in every 285 children in the United States will be diagnosed with cancer by the time they are 20 years old. (3)

Childhood cancer occurs regularly, randomly and spares no ethnic group, socioeconomic class, or geographic region. In the United States, the incidence of cancer among adolescents and young adults is increasing at a greater rate than any other age group, except those over 65 years of age. (4)

On average, pediatric hospitalizations for cancer costs almost 5 times as much as hospitalizations for other pediatric conditions. (5)

Childhood cancer threatens every aspect of the family’s life and the possibility of a future, which is why optimal cancer treatment must include psychosocial care. (6)

For children and families, treating the pain, symptoms, and stress of cancer enhances quality of life and is as important as treating the disease. (7)

Changes in routines disrupt day-to-day functioning of siblings. Siblings of children with cancer are at risk for emotional and behavioral difficulties, such as anxiety, depression, and post-traumatic stress disorder. (8)

Symptoms of post-traumatic stress disorder are well documented for parents whose children have completed cancer treatment. (9)

Chronic grief has been associated with many psychological (e.g., depression and anxiety) and somatic symptoms (e.g., loss of appetite, sleep disturbances, fatigue). (10)

Sources

(1) cancer.gov

(2) state cancer profiles.cancer.gov

(3) Cancer and Facts, 2014 American Cancer Society

(4) cancer.gov

(5) Healthcare Cost and Utilization Project, Statistical Brief #132, 2009

(6) Institute of Medicine, 2008 – Cancer Care for the Whole Patient

(7) Institute of Medicine 2015 – Comprehensive Care for Children with Cancer and Their Families

(8) Alderfer et al., 2010 (Journal of Pediatric Psychology, 19 (8)), Alderfer et al., 2003 (Journal of Pediatric Psychology, 28 (4))

(9) Kazak et al. 2004 (Journal of Pediatric Psychology, 29 (3))

(10) Alam et al. 2012 (Death Studies, 36 (1))

Cheryl S.

On July 2, 2016

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